here some typical things that i make my day go around
( when i am in bed rest )
- blogging , obviously but that is what i do everyday so that is nothing new lol
- trying to get some rest
-look through my social medias sites i am follow
- i also found different applications which i play when i have nothing to do
i though i would talk a little bit about how i got this condition because i wasn't born this way , which sometimes i wonder if it wouldn't be easier to be because then i wouldn't knew how to be healthy ?
anyway , everything begun when i played at schoolyard with an friend of mine , it was early autumn and it had rain . So i fell of this climbing frame and couldn't move an inch .
I have no idea how i got to school because of the agony and pain but one thing i am sure of , my friend didn't help me with anything - even get help ?
It wore an long journey to make me accept myself as epileptic , to be proud to say who i am that and not care if people just gonna like me for me or feel pity for the girl in the wheelchair but now i honestly don't care , i know there are some people that have an unconditional for me and support me , got my back which makes me happy because i feel so lucky , that i found them when i needed it as most because this guys saw me for who i wore - and that is rare #2011
but back to how i got sick , after i fell from a climbing frame , i notice that i begun to start to shake , be tired , etc and we went to the doctors for make some test which told that i got a rare form of epilepsy …
- to make it easier to explain , its like 3 sorts of epileptic in one condition .
This become a huge change in my life , from being popular to being irrelevant in school ( because i couldn't keep up with my friends because i needed to sleep certain times and stay away from noisy places but ) i had really hard to accept that i
could't be able to ride a bike anymore , horse riding or just go for walk by myself . Always need to be keep an on i had really hard to accept because i always been independent but now i get i just have to find an other way to freedom …
I never really thought i would get myself in a helicopter
for many reasons like i am sorta allergic against loud sounds
but crazy enough , clubs and festivals - is ok
because then i know
which kinda level of music i am dealing with
if this make sense ?
its just when i get surprise
i loose control
over my body
but i have some ways that i keep myself
away from all those pitching noises
and
that is earplugs
an vital thing in my life
they are like my lifesaver
so i thought i would talk a little bit about my seizures because today i had one
but don't you worry , i am alright - no broken bones - just a really soar body !
it stills amaze me that my relatives don't show any kind of empathy of what
i am dealing with daily , their egoististic comments about that i should be in time
but what they don't seem to get is that - is them who have to be flexible with time
because my seizure come and go , and you never know when you will fall !!!
one thing that always been bother me is when people tell me that animal cruelty is wrong , let me emphasize what i mean with this : i DONT mean that i like people should be doing that because violence is never the answer but when people around me take up this subject i just wanna scream because there is an reason why i am still alive and thats because of those medical testing they use to get right kinda medication for my epilepsy . In the best world , we wouldn't have to use rabbits , rats etc but so far hasn't science found an answer how you will find a cure to my condition , so what right do you got to say its cruel when you wear makeup and clothes made of leather , fur and skin …
at least i got an excuse why i do wear things and thats because of the skin I'm in !
so i thought i would talk a little bit some of the complication of sitting in a wheel chair while you travel , with this pitchure : Its taken at sugar leaf in Rio 2014 , which was overall an lovely day out but there wore some things that made it hard for me like there wore an gap between the platform and the cableway which made it was hard to get the wheel chair over but you now me - i am not the one that give up in by the first obstacle i get !
Also there wore a lot of walking and some stairs , which wore pretty hard but i am stubborn so i am use to get by , i am not one of this girls that give up ...
I like to see my life as the ultimate obstacle court and i am pretty good with getting solution to what i should do when i met a problem !
In Rio , by the famous statue and at Christ the Redeemer an foggy day which " normal " people with non - condition would probably think is
bummer but the fact is : this wheater condition fit mine better for many reasons like …
- no long cues
- not so crowded
- no sun light
the cons though …
- you do get better photo opportunity in the sun lol
So as i might mention is that i don't drink , not that i don't judge people who do or not that i don't want - intact , i really would love to take a cold beer but that is something that is out of the question for a girl like me because you don't mix alcohol with that , but don't get me wrong !
i think that people who drink are the coolest and maybe thats why i want to become one of them ?
My secret dream is to get real drunk and get an hungover - maybe just for one night so i know what people are talking about because i have no idea what the fuzz about
Anyway , i guess i have to settle with being drunk in love and its kinda awesome to …
i always thought i knew myself , who i wore but i realize that i had no idea what i was dealing with ?
As i been written in earlier post is that i been kinda clueless when it comes to my condition and brush off everything people said because i didn't want accept myself as sick but then around 2011 …
i met people that made me realize that just because i got epilepsy , it doesn't make me less of an person - and they made me realize my own worth - i guess it wore all about timing and i will forever be grateful for their kindness , open hearts and minds ...
as i have talked about this condition of me is very strange . I don't really know a lot about it but i am trying to become better with learn about my illness , so i guess thats why i started this blog ? So i thought i would talk about my epilepsy , the little knowledge i know i mean and i hope you all realize i do this blog for me . there a lot of diffrent kinda epileptics , my sort is a rare on ( at least in sweden and one thing i take pride in is that i am the youngest with this condition , i am also very proud that i have went out school with really good grades because nobody in my with my condition has an done that , and i am also proud over that i wore studying in Brighton 2011 , and i am also impressive by myself and my blogging and of course all my travels #lol .
so i thought i wore gonna talk a little bit dogs , this is my grandmas and is a labrador but i though i wore gonna talk about how dogs can help you as an epileptic , seizure dogs !
This dog isn't one of them but heres some information about them :
The term "seizure dog" covers a variety of activities associated with a service dog's response to an epilepsy seizure. Some dogs have been trained to bark or otherwise alert families when a child has a seizure while playing outside or in another room. Some dogs learn to lie next to someone having a seizure to prevent injury.
Others are said to be able to activate alarm systems. Dogs that are trained to respond in various ways when someone has a seizure are no different from service dogs for other disabilities. Public interest in seizure assistance dogs has fueled demand for dogs with these skills.
Some people with epilepsy have found that trained seizure dogs help them with securing speedy assistance when a seizure occurs or alerting others for help. Dogs can be trained as service animals for people with seizures and the law protects a person's right to use the animal in any public place.
A response dog might be trained to bark when a child has a seizure so that family members know what is happening. Or, a seizure dog may put its body in between the seizing individual and the floor to break the fall at the inception of a seizure. Some seizure dogs may even be trained to activate some kind of pre-programmed device such as a pedal that rings an alarm.
one of the best things for an girl that got epilepsy during winter is an cosy one piece , because the fabric shelter you body from the cold and provide your body to stop shaking - or at least mine , certain
seasons makes it worse but i have begun to see my life as an obstacle court and the way i have to handle myself to slide through the ice and walk through the snow , thats why its very important that cities take their responsible and take care of the ice during that period , not only for my sake - people that are elderly are also have problem with this is and the consequences can be severe if they don't because you might fall and break something …
but here is one great thing that make me get around during the winter and thats an kick .
one of the things i am suffering of as epileptic is insomnia , lack of being able to sleep regally which is
kinda important for a girl with my health issues but i have my ways to get around this problem …
i am usually feel at best when its evening or night because thats not that much sun that bother me then , and because other people are sleeping - they are not making any noise which i appreciate !
I spend my days often catch up with the sleep and some people have hard to get that this is me time , for my health so i load my energy before i can go out , hang with friends , do events , travels etc …
and
i write this blog to get an better understand of my
condition ...
when i wore in my teen i usually felt that i wore nothing worth because of my disable .
you have no idea how many times i got falling over when i got out and clubbing but
know i just don't care , i know there are some people that do - sadly they mostly
foreign friends and for those people , i feel a ton of love but most import i feel
love for myself ….
most beaches are not that handicap accessible but there is a beach in
Ibiza that are , which i love . It also got a ramp where you can
sit on with your wheelchair and it give shelter from the hot sun .
i discovered it last year when i went to Ibiza and the best part ,
it was just around the corner from the hotel
where was staying during that time ...
its very good that it was so near located because i couldn't walk properly
without my wheelchair during time so that is a plus …
its not often i go to the beach , not even on the summer because
i am extreme sensitive at light and always wear sunglasses even
inside if its needed because of health issues
but when i go out
i don't want to lack of room for my wheelchair be an issue
because that is just arrogant !
some people don't just get how it is to live with epilepsy so i found this girl
at youtube who is pretty great to explain it all and hopefully you all would
understand this condition better , it was nothing i wanted but have come to
terms that this is what i am , living with an invisible disable !!!
